Thursday, August 26, 2010

DAY 160

Karson is starting to talk a little. He is most alert right before he goes to bed and we think it is one of the medications that we give him to get his sleep patterns back to normal. He answers our questions which is huge because that means that his brain is making the connection. He has said three words: yes or yah, Hi and the most important "Mom". Now he doesn't do it every time you ask him, but he does it sometimes which is amazing. It is so nice to hear his voice that most of the time I just cry. He is now very emotional when we leave, which is so hard. He gets very frustrated now and hollers at times. In fact, when I leave the room to go to the nurses station for something, I can hear him clear down the hall. I can't wait for the day that we can bring him home. When he is answering questions, we ask him so many things. He remembers most of you visiting. Thank you so much for keeping him company through this ordeal. We have an appointment with his neurologist on Friday morning to go over his meds again and hopefully that will aid in him waking up a little more. He is still very stiff so we are thinking that a baclofen pump might help to ease those muscles. His new splints for his hands and arms seem to be helping quite a bit. He isn't as stiff in his arms and hands as he used to be. The U of U will see him on September 22 to see if he can go to their incredible rehab. He will have appointment with them sooner if one comes available. All your prayers and support are certainly working, even it is very slow process. Good things come to those who wait. We appreciate all of you so very much. LOVE YOU ALL................

12 comments:

  1. How thrilled we are to know that you have heard "Mom" once again! You show 'em Karson! It seems like each week you are showing improvement. Way to go! Keep it up big man! We love you, Uncle Mark and Aunt Lisa xoxoxo

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  2. Oh wow!!!! That is so amazing!!! Keep up the good work Karson. You will have an amazing recovery

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  3. Where is he now so that I may come visit?

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  4. I saw Jordan's Tweet today, so I checked the blog. Great news!

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  5. Susan, I bet hearing Karson say mom was music to your ears. This is fantastic news~ I am praying for you Kars everyday. You are so strong! keep it up! we love you so much!
    xoxo

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  6. Yo Karson what up man this is Levi!!! Dude Im sooooo glad to hear of all your improvements you've been making these last few weeks. Thats one thing we that know Karson know is that you try DAMN HARD and use maximum effort in everything you do and your rehab most definatley has not been an exception so keep it up buddy! Hopefully I can come stop by and visit for a few minutes when you are around and also not asleep!!! Also when visitors come and you look like you might be sleeping do we wake you up or just let you be? Can someone tell me what Kars prefers? The last thing I wanna do is wake him up from a deep peaceful slumber! Ive done that before to Kars and he always used to be so crabby haha!! ---Lev

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  7. YAY KARSON! What incredibly wonderful news! There is no sweeter word in the world than hearing your child say "Mom." You also know that the bond between the two of you is stronger than any challenge presented him. How determined and patient Karson has been in waiting to bless your life---and his, in order to finally be able to say "Mom." And Susan, you know that it is filled with all of the love, gratitude and emotion of the past 24 years. Your family has been a great example of selfless love, faith, commitment and patience. Our prayers are with each one of you. We love our Karson; we love all of you. It only gets better from here! Carrie, David and Bryan.

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  8. Hi My Berry Mos Favrut!! I love you! I am sooo excited to hear about Karson's progress. I think about him and all of you so much. I can't imagine how your heart must have jumped right out of your chest when he called you by name!! That must have been incredible. I want to come and give you a big large hug! When are you usually at the hospital? Let me know on FB. Been crazy....my Mother-in-law just got out of the specialty hospital after 4 months, been takin care of her. Hang in there Suz! He is young and the brain is amazing! He is progressing well! My thoughts and prayers are with Karson and all your family. Luffs!

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  9. Hello Karson, Amazing, a Beautiful Amazing. Very Happy for You, there is improvement all the time, a tribute to your good effort. Each day is a step to your healthy recovery :) Keep up the daily good work, the world is with you, you shall succeed. Do Take Care and talk with you soon, Bruce.

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  10. Karson,
    That is so great that you got your trach out and even better that you are starting to talk!! We are so happy for you!! Keep up the good work! We love you!!
    Love,
    Cameron, Kenzie, Kamree, Carter and Kate!!

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  11. Great to hear about your improvement Karson! I'll continue following your blog and come see you then next time I'm in Utah. Keep up the hard work.

    BShump

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  12. Goodness Aunt Sus you about made me cry reading this last blog! I'm so so excited for you guys! Karson you have come so far and you are definately a fighter!!!! Keep pushin.. I know you can do it! :) Love, Kaili

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