DAY 142

Karson had a very busy week last week with seeing specialists and doing his therapy across the street. He loves going outside. When we put him in his wheelchair, we usually keep him in it for around 4 hours and he loves a change of scenery. On Friday, we took him to his neurologist and he put Karson on some new brain stimulating drugs. We should really see them take hold in about a week. The neurologist was impressed by how he followed commands. He isn't able to do much but when you tell him to do something, he does it faster which tells us the brain is mending. Karson is scheduled to have his no. 4 trache (he has a no. 6 in now)to be put in in the morning and if he does well with it, then the respiratory therapist will button it and keep it that way until the later part of the week. If he does well, then, we take the trache out at the end of the week. The botox that we gave Karson in his hands is working well. The therapists are able to work his hands and wrists without to much pain. In a month, they will probably give him a little more botox. This week will be a lot of hard work for Karson to be able to breathe through his mouth and nose all the time which he hasn't been doing for 4 1/2 months. He will also have to swallow, which we have been practicing and he is getting better at. He has always swallowed but sometimes he forgets so we are practicing to do it on command. He is taking small steps to move toward the goal and he will eventually get there. Thanks for all the support. Love to you ALL.