DAY 132

Karson is so good about following commands now. He is wide awake and does everything you tell him. His hands and arms are contracted and don't move much. His legs are pretty stiff also but he really tries hard to move them when you ask him too. I had a hand specialist look at his hands and the splints that we were using aren't the best ones for Karson so we ordered different ones. With physical therapy, Karson will be able to get movement back in both arms and legs. He continues to have his trache buttoned with his speaking valve on and is forming words. It will be so much easier to form them with his trache removed. He does well with swallowing, coughing and making noises on command. We have an appointment with a specialist that can tell us when the trache can come out, hopefully either today or tomorrow. The specialist was just going to stop by the rehab facility because he has another trache patient that he has to look at. Karissa put some new music on Karson's Ipod and he is loving all the new tunes, it really isn't music to my ears, but he is enjoying it so that's all that matters. Kass gave him a buzz haircut and it is keeping him cooled down for the summer. He loves all your daily visits and your blog comments. Karson is a very private person so I didn't know how this would work, having his life spelled out for everyone to see, but he seems to be handling it well. We all might be in trouble when he can talk again. Thanks for the continued support from all of you.