Saturday, December 25, 2010
DAY 280 - Christmas Day
Christmas certainly has been different this year without Karson here. He got to come home for 3 1/2 hours yesterday but the van wasn't running today so we couldn't get him home. He loved being here on Christmas Eve but most of all, we enjoyed him here. Our house just isn't the same without our everloving, always joking, spontaneous, and sweet brother, son and uncle. Our little Reese, who just turned two, looked at me today in the mist of celebrating, and said "Where's Karson?" All of us were missing him badly and know that he will be here with us next year. He had an appointment with Dr. Elovic on Thursday and they moved his baclofen pump which is always a good sign because if he hasn't progressed or if he is in any pain, they won't increase it. In January, we have him signed up for 2 hours a day with a physical therapist that we know will aid in getting Karson where he has to be to get moved up to the U of U rehab. His speech therapist says that every time she works with Karson, he gets better. He is trying to talk to her so she is going to work on ways for him to tell us what he is trying to say. As soon as the speech therapist feels like he is ready, we will do a swallow test to see if he can start putting solids in his mouth. I can't wait to give him his first bite of real food. We wish all of you a very happy holiday season. Happy New Year to All.