Wednesday, January 19, 2011
At Karson's last appointment, he got his baclofen increased to 300. It can go up to 1000, if we have to. It really seemed to ease up his muscles this last time. His infection is under control but his heart rate seems to stay high. This week he seems a lot more comfortable. My friend Allyson gives him massage once a week and my friend Jay, who is a chiropractor, works with him once a week. He loves both of these treatments. Our physical therapist has increased the time he spends with Karson to see if he get him ready for the U of U. We still don't have a definite time for him to go there yet. We are staying very positive that it will be soon. Karson had a lot of visitors last week. Thanks to all of you for supporting him. If Karson doesn't answer you when you ask questions, ask him to use his voice and that usually makes him say it louder so that you can hear him. He is great with yes and no questions and is starting to say a lot of other words. He loves his speech therapist, Ann Sumner, and works very well for her. His weight has stayed the same for a couple of weeks now so that he is not loosing weight anymore. He is at 140 lbs. My heart is so full of gratitude for all the people that have gotten Karson this far. We couldn't ask for a better family or friends. Thanks for all the support and love.